Last week was a busy week. I attended a high energy conference in Chicago. I came home on Monday, August 18, which was also our 41st wedding anniversary.
My train arrived at 11:00 AM. My husband met me at the depot wearing his bright pink shirt. We went out for breakfast followed by my annual mammogram at 1:00 PM.
I have discovered over the past two years, that there are many details to staying on top of all the follow up appointments. I have to keep track of blood draws – where and when; every six months the once cancerous breast has a mammogram; and then there is the annual bilateral mammogram; and finally the office visits with the oncologists.
Last week one of the members in my support group mentioned how she finds keeping up with these appointments and details exhausting. And, at times, she will cancel an appointment and reschedule because she is tired and anxious. The anxiety and waiting wears you down. An interesting discussion in Facebook ensued and we soon discovered that many of us find we have to limit our survivor appointments to no more than two a day. Anything over that is overwhelming.
Don’t get me wrong, we are happy to be survivors, however, our “new normal” is not the same life we had before. Yes, there is much to be grateful for, yet we would love to have our lives fully given back to us.
My monthly calendar fills up with medical appointments quickly. Some are purposely clustered together. We do what we have to do to keep the risk of recurrence low. Juggling these appointments would be a lot easier if we had someone to do it for us. Instead of a personal secretary we could have a breast cancer secretary. He/she would have to be well organized and love the color pink.